The Relationship of Participation Restriction with Quality of Life in Individuals with Spinal Cord Injury

Special Article – Spinal Cord Injury Rehabilitation

Phys Med Rehabil Int. 2016; 3(5): 1099.

The Relationship of Participation Restriction with Quality of Life in Individuals with Spinal Cord Injury

Huang WC1, Wu TF2,3*, Liao HF4, Liou TH5,6 and Kang YW1

¹Department of Rehabilitation, Miaoli General Hospital, Ministry of Health and Welfare, Miaoli, Taiwan

²Graduate Institute of Rehabilitation Counseling, National Taiwan Normal University, No.129 Sec.1 Heping E. Road, Taipei, Taiwan

³Special Education Center, National Taiwan Normal University, Taipei, Taiwan

4School of Physical Therapy, National Taiwan University, Taipei, Taiwan

5Department of Physical Medicine and Rehabilitation, Shuang Ho Hospital, Taipei Medical University, Taipei, Taiwan

6Department of Physical Medicine and Rehabilitation, School of Medicine, College of Medicine, Taipei Medical University, Taipei, Taiwan

*Corresponding author: Tingfang Wu, Graduate Institute of Rehabilitation Counseling, National Taiwan Normal University, No.129 Sec.1 Heping E. Road, Taipei, Taiwan

Received: September 25, 2016; Accepted: October 17, 2016; Published: October 20, 2016

Abstract

Objective: To investigate the relationships between participation restriction and quality of life in persons with traumatic spinal cord injury (SCI) and to compare differences of the quality of life and participation restriction between two groups, with or without employment.

Method: Thirty-six adults with paraplegia aged from 18 to 55 years participated in this study. The performance and capability dimensions of 6 domains of the Functioning Scale of the Disability Evaluation System-Adult Version (FUNDES-Adult) were used to measure participation restriction with and without environmental facilitators respectively. The Quality of Life Questionnaires for Spinal Cord Injury (QoL) was used to measure subjective wellbeing and health-related quality of life. The relations between FUNDESAdult and QoL were examined by the Pearson correlation coefficient (γ) and the t test was used to examine the differences of FUNDES-Adult and QoL between the two groups.

Results: There were significant correlations between participation restriction and quality of life, especially the participation restriction of performance dimension. Persons with employment showed significantly higher QoL scores in Physical Health and Environmental Domains as well as less participation restriction in Household and Work Domains than those without employment.

Conclusions: For persons with SCI, participation restriction with existed environmental facilitators closely associated with the quality of life, and employed persons had better quality of life and social participation. Environmental supports are important for enhancing quality of life.

Keywords: Employment Status; Social Participation; Quality of Life; Spinal Cord Injuries

Introduction

Spinal cord injury (SCI) is one of the most serious types of injury, and usually affects all aspects of the individual’s life including physiological, psychological and social functions [1]. According to the Taiwan National Health Insurance database, the average incidence of acute SCI in Taiwan was 0.062% per year, and it was similar rate in both genders (male: female =0.99: 1) [2]. The major causes for traumatic SCI in Taiwan include: crushing injuries by heavy objects, falling down from a great height, car accidents, sports injuries, and cut wounds or bullet wounds [3].

Spinal cord injury usually causes permanent impairments and results in tremendous medical sequelae [4]. With the improved health care, the early phase death rate is decreasing and the life expectancy for persons with SCI is obviously increasing [4,5]. As long as the life span increasing, the quality of life (QOL) has gradually become one of the major rehabilitation objectives and important indicators of rehabilitation effectiveness [4,6]. Subjective QOL, such as happiness, psychological well-being, and life satisfaction, in persons with SCI has been reported lower than that of non-SCI group [7]. In addition, based on a meta-analysis research the QOL is fairly consistently correlated with social participation level, but not with the impairment severity of body function and structures [7]. White neck (2004) also pointed out that the severity of a spinal cord injury is not the best predictor of long-term outcomes [8].

According to National Spinal Cord Injury Statistical Center (NSCISC), 59% of persons with SCI, aged from 16 to 59, were employed when they falling the mishap. Nevertheless, only 29% of them retained their jobs after eight years from accidence [9]. The employment rate was low for individuals with SCI [10]. Targett and his colleague believed that in addition to the personal sense of achievement, social identity can also promote life satisfaction for patients with paraplegia [9]. Chou et al.’s article also noted that the employed persons with SCI have better QOL than those nonemployed. There was evident positive correlation between job satisfaction and QOL for persons with SCI [11].

Taiwan’s Disability Evaluation System (DES) adopts the conceptual framework of the World Health Organization’s “International Classification of Functioning, Disability, and Health (ICF)”. The medical teams of the authorized hospitals, dated from July eleventh, 2012, started to assess persons with disabilities in two aspects: one was focused on the body function and structure; and the other was on activities and participation. With the reference to WHO Disability Assessment Schedule II (WHODAS 2.0), based on the 36-question version, the ICF team got permission to translated into Chinese and revised it into “The Functioning Scale of the Disability Evaluation System-Adult Version (shortened as FUNDES-Adult) to measure the individual’s activity and participation restriction on six domains: Cognition, Mobility, Self-care, Getting along with others, Life activities (household/work or school activities), and Participation [12].

The aims of current research are to investigate the relationships between participation restriction and quality of life in persons with spinal cord injury, and to compare differences of the quality of life and participation restriction between two groups, with or without employment.

Methods

This is a concurrent study and it has been approved with the ethical review done by Institutional Review Boards of two general hospitals. All participants had their written consents before enter this study.

Participants

Thirty-six patients with paraplegia, aged from 18 to 55 years, were invited to participate in this study. The participants were recruited from a rehabilitation department of an area hospital and a Spinal Cord Injury Association in central Taiwan. All the participants were diagnosed by neurologists as traumatic paraplegia and with disability identifications. The exclusion criteria were: brain injuries, cognitive dysfunction, visual and hearing impairments. Each participant received interview by a qualified interviewer of the Functioning Scale of the Disability Evaluation System and filled out the Quality of Life Questionnaires for Patients with Spinal Cord Injury. Their demographic data were shown in Table 1.